Autism Follow up

Candidate’s instructions

Where are you:
You are an FY2 in GP.

Who the patient is:
Graham Smith, 3 year old boy has come for follow up.

Other information you have about the patient:
3 weeks ago he had presented to your GP surgery with speech and learning difficulties. He was referred to the autism team and a diagnosis of autistic spectrum disorder has now been confirmed. He has been referred back to your practice for follow up.

What you must do:
Talk to the mother and address her concerns.

Patient Information

  • You have come to the GP today because your 3 year old child, Carl, has not been able to speak until now.
  • He likes playing by himself only.
  • He is your only child so you do not know at what age a child should be able to speak.
  • He has a habit of playing with the same toys every time.
  • He does not like to change the toys.
  • He is not able to speak any words but sometimes he makes some screaming sounds.
  • You have no problem with other milestones.
  • He is able to walk, sit, and he can eat and drink ok.
  • He does not smile much to others either.
  • Recently you and your partner took him to the daycare and that is when you notice that other children of his age are able to talk.
  • The daycare teacher also mentioned that he does not like to play with other children and he prefers being alone playing with his toys.
  • At the age of 12 months he had MMR vaccination and he is up to date with all other vaccinations.

Patient Concerns:

What will happen now?
Is there anything else I need to do for my baby?
Is it because of the MMR vaccine?
Should I give MMR vaccination to my baby?

Approach

GRIPS

Paraphrase:

Paraphrase the scenario about them being referred to the autism team and them coming for follow up.

History

  • Symptoms of autism (speech, smiling, interaction with others, responding to his own name, learning abilities)
  • Other milestones (walking, responding to surrounding, vision)
  • Vaccination history
  • Birth history
  • PMAFTOSA
  • Social history
    • Who is at home?
    • Do you have anyone else helping you to look after the child?

Ask and explain what autistic spectrum disorder is.

  • It is a lifelong condition that affects how people interact and communicate with others.
  • Explain that the cause of austism disorder is not known.
  • Prognosis: It is a life long disorder and child may have learning difficulties, language impairment and may have mental health problems.

Perform the assessment

  1. Functional Assessment

    A. Behaviour: What type of behaviour do you find most challenging with Graham? (no smiling, playing alone, screaming episode, speech difficulties, learning difficulties-building towers and playing with blocks)
    – Frequency: How frequently does that happen?
    – Duration: When he starts doing that, how long does he continue doing that?
    – Severity: How does that affect anyone around?

    B. Sleeping
    – Any problem with sleeping?

    C. Eating
    – Does he eat well?
    – Can he say when he wants to eat?

    D. Vision
    – Is he able to see properly?

    E. Hearing
    – Is he able to hear properly?

  2. Expressive communication
    – Is he able to tell you if he wants something e.g. food or drink.
    – How does he behave if he wants something for example if he wants to eat or drink?
    – Speech: Can he say ‘mama’, ‘dada’ or ‘papa’?

  3. Receptive communication
    – If you talk to him, does he understand?
    – Does he know his name?
    – Does he respond to your smile or hug?

  4. Self Harm
    – Does he have any sort of self harm behaviour such as repeatedly scratching himself?

  5. Stereotype
    – Does he have any stereotype behaviour such as rocking back and forth or flipping of hands?
    – Is there anything that stimulates this type of behaviour?

Management

Explain how the child may be affected. Child may have:

  • Learning difficulties – we need to refer to occupational therapist
  • Speech difficulties - we need to refer to speech and language therapist
  • Understanding difficulties – needs to go to special school where there are other children with autism. Normal daycare might not be appropriate for Graham, he needs to go to a school where there is support for autism.
  • Behaviour problems – we need to refer to behaviour therapist.
  • Home adaptation. Advise parent to make resonable adaptation to the personal space of the child.
    • We might need to create a friendly and safe environment at home for your child. His room should have certain types of colours like cream colours and not colours like yellow or white, no harsh lights, noise environment is not good for the child.
  • Mental health problems such as anxiety - we need to refer to psychologist
  • Explain that he will need support in education and health services.

Explain what support and benefit is available for the child.

  • There are organisations that can support: These organisation can help with the learning environment of the child as well as offer financial support.
    • Autism Alliance Charity
    • Ambitious about Autism Charity
    • The National Autistic Society Charity
  • Offer leaflets about Autism and where they can get care and financial support.
  • Explain that they can get support workers to help look after the child.

Note:

  • The first dose is usually 12-13 months.
  • Booster dose 3 yrs 4 months to 5 years.

1. Contraindications:

  • Acute illness – Postponed until the condition has resolved.
  • Severe local generalised reaction to previous dose of MMR.
  • Allergic to neomycin or gelatin
  • Untreated malignant disease or impaired immunity – e.g. immunosupression, steroids, radiotherapy or cytotoxic drugs.

2. Adverse reaction

  • Common
    • Fever or rash may occur one week after immunisation.
    • Parotid swelling in 1% of children.
  • Rare
    • Febrile convulsion. The incidence is 1 in 1000.

3. Autism

  • A lot of research has been conduction and no link has been proven between MMR vaccination and any bowel disease.
  • Some private clinics offer single vaccines but the Department of Health recommends that parents be discouraged from using them.
  • MMR is safe and the information which was published in the past has now been discredited.
5 Likes

Another Approach

D: I had a chat with my colleague, he told me that he was suspecting autism and referred you to the autism team.
P: They diagnosed my child with, autism [she be dramatic]
D: I’m really sorry you’re going through this,

Follow up approach

  • PAMGUU+D
  • PBINDS
  • FMAM
  • ICE
  • EFFECTS
  • EXAMINATION

Management

  • The first thing is let me explain to you what is autism?
  • I’m afraid it’s a lifelong condition which is affecting how the child is interacting with others.
  • It’s common for Autistic children to have Learning and speaking challenges
  • However, of course we can offer a lot help

This team consists of:

  1. Speech and language specialist
  2. Occupational therapist: They would be helping in two places:
  • Your home:
    – They will visit your home because he needs to ensure that the home is a good and safe place for the child. They will create a friendly and nice environment at home.
    – The room of a autistic child should have certain types of colours only. For example we should not go for bright colours like yellow or white. We should go for something in between which is basically calming so the child is happy with those colors also we should avoid some loud noise
  • School
    – The occupational therapist will make frequent visits to the Child School to ensure that it is a safe place for him
  1. Behavior therapist.
    They will teach you and guide them some ways to be able to express themselves because usually the autistic child is having difficulty in expressing himself.
  2. Psychologist.
    sometimes the children with autism can have some mental problems and mental issues as well such as anxiety - psychologist
  3. Pediatrician: Also, the pediatrician will be always following up with the child to ensure that he is OK.

Usually autistic children are having some learning and understanding challenges, we have a special school for autistic children. Most of the children in these schools are having autism, so he will not feel that he’s alone and also the staff and this is school are well trained to deal with the children.

We have some charities and support groups. Organizations- They can offer all the support. If you need someone to take care of the child, or need help with taking care of the child, they can offer you a carer

Concerns

P: Can’t he go to a normal school?
D: Since we have a school in which the staff is well trained to deal with autism and the child will not feel alone

P: I have given him MMR vaccination. I read that this could be the reason behind it.
D: MMR vaccination. It’s a vaccination which is always offered at the age of 1 year, 12 months and around the same time symptoms of autism will start appearing. So they used to link between the MMR vaccination and Autism. So this was investigated deeply many researches have been done on many children and they ended up finding no link between MMR vaccination and autism

P: Will he be able to speak?
D: He should be able to speak of course after offering him support and help by speech and language therapists.

3 Likes
  • PAMGUU+D
  • PBINDS
  • FMAM
    What’s the full form of these pneumonics
1 Like